Yesterday, I started a series called My Steps Towards Transplant to share my story as I begin the process of getting a double lung transplant for my cystic fibrosis. In part one, we looked back on my decision to get a evaluation, which really began more than 8 years ago. I shared my experience on how I got to the point of making the decision to move forward with a transplant and how it was a relatively easy choice for me to make. You can read the full story here, My Steps Towards Transplant: The Decision to Evaluate.
Today, I want to talk about the weeks before my evaluation. The logistics or timeline, if you will, what steps I took to prepare and most importantly, how it felt.
June 7, 2017
June 5, 2017
My Steps Towards Transplant: The Decision to Evaluate
Four weeks ago, I officially began the evaluation process for a double lung transplant. But truthfully, my transplant experience started way before that. And it's going to continue far beyond that two-day evaluation. Today, I'm starting a blog series called My Steps Towards Transplant. This first week or two will chronicle my journey (so far) with transplant, from the first time I heard the words "double lung transplant" to the results of my evaluation. In the next few months/years, I'll continue to share my story as I move forward in this chapter of my life with cystic fibrosis.
I wanted to write this series for a few reasons. When I first publicly announced that I was being evaluated for transplant, I had an incredible outpouring of love and kindness. I started a public Facebook page, as a way to continue being an advocate and spread awareness about cystic fibrosis, but also to share my new transplant journey. I had over 500 likes in just two weeks and had dozens, if not hundreds of comments and messages. Family, friends and even strangers from all walks of life were getting in touch with me to say they were thinking of me and they loved me. I had so many people supporting me as I started this new process. Sadly, I haven't had a chance to update any of them on how it went, because immediately following my evaluation, I ended up getting a cold and was sick for several weeks... cystic fibrosis always has impeccable timing like that. I have chatted with family and some friends when I've seen them recently, but the majority of my friends don't know what happened, so that's why I'm writing now (p.s. here's a shameless plug to say please like my Facebook page, High Heels & Hospital Bills if you haven't yet :D ).
The second reason for this series is because in preparing for my transplant evaluation, I had questions.
I wanted to write this series for a few reasons. When I first publicly announced that I was being evaluated for transplant, I had an incredible outpouring of love and kindness. I started a public Facebook page, as a way to continue being an advocate and spread awareness about cystic fibrosis, but also to share my new transplant journey. I had over 500 likes in just two weeks and had dozens, if not hundreds of comments and messages. Family, friends and even strangers from all walks of life were getting in touch with me to say they were thinking of me and they loved me. I had so many people supporting me as I started this new process. Sadly, I haven't had a chance to update any of them on how it went, because immediately following my evaluation, I ended up getting a cold and was sick for several weeks... cystic fibrosis always has impeccable timing like that. I have chatted with family and some friends when I've seen them recently, but the majority of my friends don't know what happened, so that's why I'm writing now (p.s. here's a shameless plug to say please like my Facebook page, High Heels & Hospital Bills if you haven't yet :D ).The second reason for this series is because in preparing for my transplant evaluation, I had questions.
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